We are still overseas, and the main reason for going was to present at ADI Conference Budapest 2016. I have heaps to post about that later, but for now our added-on holiday is coming to a close. So I thought that I’d post a few thoughts as a person living with dementia.
Recovery from overseas trips and recently even trips around Australia, presents a number of difficulties for me. It’s not only the jet lag that affects me. Travelling is a quite complex experience, and unfortunately I can’t do ANY of the organising, although I think Glenys sometimes wishes that I could. These last 6 weeks had many elements involved and she did a great job having everything flow well.
After returning from my 825 kms walk/ cycle challenge across Spain last October, it took me well over three months to recover!! Thus, when planning this trip Glenys realised more than I did, the importance of factoring in opportunities for me to experience as much rest and relaxation as possible throughout the whole time. Rushing and travelling and people, are stressful for me. Noise and crowds create confusion; not knowing in advance where I can store the luggage; and, even worrying about how to open the train door, basically result in stress and I can’t think clearly, which leads to severely impaired functioning.
In spite of Glenys’ best efforts, when you’d imagine that I would be quite relaxed in a quiet village with gentle walking and impressive views (and culinary delicacies), I have been tired, both physically and cognitively, during this last week. In one case it almost resulted in me walking out in front of traffic. What cars!? What road?
I suppose the cognitive tiredness was predestined to occur, after all I do have Dementia. Although I try to live as well as I can, out of nowhere this thing called Dementia that lurks in the shadows, unexpectedly manifested itself again. It reminded me of my vulnerability and limitations, and the importance of listening to Glenys’ guidance (for when I can’t judge as clearly) and my own sense of well-being. I still haven’t perfected the art of monitoring the things that I do, or more importantly the early signs and symptoms that can lead to cognitive collapse!
For me, life has to be simple.
Sent from my iPhone